MWAKA Chewe wasn’t supposed to live this long, many would say. But born with sickle cell disease, a condition that often comes with a grim prognosis, Mwaka defied the odds.
For years, there has been common notion that sickle cell patients do not live up to 25 years old or above. Today, at 41, Mwaka is a beacon of hope for others battling the disease.
Diagnosed at just two years old, she battled not only the physical pain of the disease but also the social stigma that surrounded it.
“I remember being mocked by my teacher,” Mwaka recalls, her voice dropping a little. “They thought sickle cell was contagious.”
The isolation she faced as a child fueled her determination to fight back.
According to health experts, sickle cell is a genetic disorder that affects the shape of red blood cells causing sudden and severe pain, shortage of blood and increased risk of infections.
Following her predicament, she decided to advocate for children living with sickle cell at Arthur Davison Children’s Hospital in Ndola as a volunteer.
“I wanted to help the children because I saw how mum and dad struggled each time I had an attack. It’s not easy to take care of such children. Sometimes even the nurses themselves are not enough,” she explained he ordeal.
Despite frequent hospitalizations and missed school days, she persevered.
She completed her education, earning certificates in Hotel Management and Archives and Records Management.
But her fight extends beyond her own well-being. Mwaka volunteers at the Arthur Davison Children’s Hospital, offering companionship and support to young patients battling similar challenges.
“I wanted to help because I know how hard it is,” she said “, her empathy evident. “It’s not easy on the families either.”
Mwaka’s journey is an inspiration, a testament to the human spirit’s ability to overcome adversity. Sickle cell may be a part of her life, but it doesn’t define her.
Mwaka is a daughter, a volunteer, a traveler, and a living testament to the power of hope.
She encouraged her fellow sickle cell patients to live a positive life.
“Don’t let your condition define you. Be positive and don’t listen to those who say sickle cell patients don’t live long. It’s possible to live long, look at me, 41 years is not a joke and I believe I will live longer than this,” said Chewe.
In her free time, she enjoys travelling, spending time with family and volunteering with organizations that support individuals with sickle cell.
By Catherine Pule
Kalemba, March 25, 2024
